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PANTAO, an International Journal of the Humanities and Social Sciences, with ISSN 3028-0877 | e-ISSN 3155-6043, is an annual journal that serves as a scholarly platform dedicated to the exploration and dissemination of research in the disciplines of humanities and social sciences.

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Author

Vice B. Villanueva*
University of Perpetual Help System-DALTA, Las Piňas City, Philippines

Abstract

Despite the Philippines’ commitment to inclusive education, implementation in public schools often remains insufficient, leaving parents of children with special education needs to endure persistent policy and practical gaps. This study explored the lived experiences of five parents of children diagnosed with autism in Las Piñas during the academic year 2025–2026, concentrating on how they construct meaning, demonstrate resilience, and exercise moral leadership in caregiving. Guided by Family Systems Theory and analyzed through Braun and Clarke’s Reflexive Thematic Analysis, the research revealed seven interrelated themes: rhythms of care as emotional order, love that carries as ethical labor, silent pedagogy as compassion under pressure, belonging as circles of help, lives re-arranged through adaptive sacrifice, uneven paths of inequity, and moral protest as quiet advocacy. These narratives described how parents transform fatigue into reform and compassion into leadership, redesigning the parameters of policy through everyday persistence. The study culminated in the Villanueva Framework for SPED, which describes caregiving as a moral rhythm sustaining inclusion through values-driven care, reflection, empathy, and faith. Findings highlight that genuine inclusion cannot be attained only through bureaucratic design but must be anchored in the ethical intelligence of families, reminding educational systems that justice in education must first be humane.

Keywords:  Caregiving, Family Systems Theory, inclusive education, reflexive thematic analysis, Villanueva Framework for SPED.

*Corresponding author / Email: vicevillanueva.dlalp@gmail.com
DOI: http://doi.org/10.69651/PIJHSS05041651

Recommended citation:
Villanueva, V. B. (2026). A journey of love and resilience: Lived experiences of parents raising children with special education needs. Pantao (International Journal of the Humanities and Social Sciences) 5 (4), 1138-1159. http://doi.org/10.69651/PIJHSS05041651

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References

Allam, F. C., & Martin, M. M. (2021). Issues and challenges in special education: A qualitative analysis from teachers’ perspective. Southeast Asia Early Childhood Journal, 10(1), 37–49. https://doi.org/10.37134/saecj.vol10.1.4.2021

Alramamneh, A. K., Al-Sabayleh, O. A., Alsarayreh, K. S. T., & Al Remawi, S. A. K. A. (2024). Evaluating parental experiences in teaching children with learning disabilities in resource rooms of public schools in Amman. In Frontiers in Education (Vol. 9, Article 1426663). Frontiers Media SA.

Ateş, H., & Polat, M. (2025). Leveraging augmented reality and gamification for enhanced self-regulation in science education. Education and Information Technologies, 1–32.

Asbury, K., Fox, L., Deniz, E., Code, A., & Toseeb, U. (2021). How is COVID-19 affecting the mental health of children with special educational needs and disabilities and their families? Journal of Autism and Developmental Disorders, 51, 1772–1780. https://doi.org/10.1007/s10803-020-04577-2

Braun, V., & Clarke, V. (2021). To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales. Qualitative Research in Sport, Exercise and Health, 13(2), 201–216.

Braun, V., & Clarke, V. (2024). Thematic analysis. In Encyclopedia of quality of life and well-being research (pp. 7187–7193). Springer International Publishing.

Carlson, R. G., Hock, R., George, M., Kumpiene, G., Yell, M., McCartney, E. D., Riddle, D., & Weist, M. D. (2020). Relational factors influencing parents’ engagement in special education for high school youth with emotional/behavioral problems. Behavioral Disorders, 45(2), 103–116. https://doi.org/10.1177/0198742919883276

Chaidi, I., & Drigas, A. (2020). Parents’ involvement in the education of their children with autism: Related research and its results. International Journal of Emerging Technologies in Learning, 15(14), 194–203. https://doi.org/10.3991/ijet.v15i14.12509

Chen, S.-Q., Chen, S.-D., Li, X.-K., & Ren, J. (2020). Mental health of parents of special needs children in China during the COVID-19 pandemic. International Journal of Environmental Research and Public Health, 17(24), Article 9519. https://doi.org/10.3390/ijerph17249519

Čolić, M., Dababnah, S., Garbarino, N., & Betz, G. (2019). Parental experiences raising children with autism spectrum disorder in Eastern Europe: A scoping review. International Journal of Developmental Disabilities. https://doi.org/10.1080/20473869.2019.1688931

Congressional Policy and Budget Research Department (CPBRD). (2023). Special education (SPED) profile in the Philippines (Facts in Figures No. FF2023-17). House of Representatives, Philippines.

Cruz, J. T. (2023, February 17). The importance of special education. DepEd Bataan Publications. https://www.depedbataan.com/wp-content/uploads/2023/02/THE-IMPORTANCE-OF-SPECIAL-EDUCATION.pdf

Currie, G., & Szabo, J. (2020). Social isolation and exclusion: The parents’ experience of caring for children with rare neurodevelopmental disorders. International Journal of Qualitative Studies on Health and Well-being, 15(1), Article 1725362. https://doi.org/10.1080/17482631.2020.1725362

DeBerry, J. (2022). When parents and educators clash: Are special education students entitled to a Cadillac education? https://heinonline.org/hol-cgi-bin/get_pdf.cgi?handle=hein.journals/stmlj34&section=18

Department of Education (Philippines). (2020). Inclusive education program [Program profile]. In DepEd programs and projects profile 2020. Department of Education.

Department of Education (Philippines). (2021). DepEd Order No. 44, s. 2021: Policy guidelines on the provision of educational programs and services for learners with disabilities in the K–12 basic education program. https://www.deped.gov.ph/wp-content/uploads/2021/11/DO_s2021_044.pdf

Fernandez, D. M. (2024). Differences in special education teachers’ applied behavior analysis scores: A causal-comparative study [Doctoral dissertation, Liberty University]. Liberty University Digital Commons. https://digitalcommons.liberty.edu/doctoral/6035/

Fu, W., Li, R., Zhang, Y., & Huang, K. (2023). Parenting stress and parenting efficacy of parents having children with disabilities in China: The role of social support. International Journal of Environmental Research and Public Health, 20(3), Article 2133. https://doi.org/10.3390/ijerph20032133

Gita-Carlos, R. A. (2022, March 26). PRRD OKs inclusive education for learners with disabilities. BusinessMirror. https://businessmirror.com.ph/2022/03/26/prrd-oks-inclusive-education-for-learners-with-disabilities/

Greenway, C. W., & Eaton-Thomas, K. (2020). Parent experiences of home‐schooling children with special educational needs or disabilities during the coronavirus pandemic. British Journal of Special Education, 47(4), 510–535. https://doi.org/10.1111/1467-8578.12341

Guerra, S. R. (2025). Educator retention in emotionally disabled students’ self-contained classrooms: A qualitative descriptive study [Doctoral dissertation, Grand Canyon University].

Kerubo, O. D., & Makanya, M. (2024). Parental involvement in training on the transitioning of learners with intellectual disability from school to employment in Nairobi City County, Kenya. European Journal of Special Education Research, 10(7). https://doi.org/10.46827/ejse.v10i7.5636

Kim, I., & Dababnah, S. (2019). Appreciation of the ‘subtle changes’: Perspectives of Korean American parents raising children with developmental disabilities. Journal of Developmental and Physical Disabilities, 32(2), 307–322. https://doi.org/10.1007/s10882-019-09693-1

Kimbrough, D. L. (2024). Elementary mathematics teachers’ perceptions of RTI2 implementation for special education students in Southwest Tennessee [Doctoral dissertation, Walden University].

Kurowska, A., Kózka, M., & Majda, A. (2021). How to cope with stress? Determinants of coping strategies used by parents raising children with intellectual disabilities, other developmental disorders, and typically developing children. Journal of Mental Health Research in Intellectual Disabilities, 14(1), 23–49. https://doi.org/10.1080/19315864.2020.1832166

Lim, W. M. (2024). What is qualitative research? An overview and guidelines. Australasian Marketing Journal. https://doi.org/10.1177/14413582241264619

Majoko, T., & Dudu, A. (2020). Parents’ strategies for home educating their children with autism spectrum disorder during the COVID-19 period in Zimbabwe. International Journal of Developmental Disabilities. https://doi.org/10.1080/20473869.2020.1803025

Mason-Williams, L., Bettini, E., Peyton, D., Harvey, A., Rosenberg, M., & Sindelar, P. T. (2019). Rethinking shortages in special education: Making good on the promise of an equal opportunity for students with disabilities. Teacher Education and Special Education, 43(1), 45–62. https://doi.org/10.1177/0888406419880352

Moyer, A. M., & Goldberg, A. E. (2019). Foster youth’s educational challenges and supports: Perspectives of teachers, foster parents, and former foster youth. Child and Adolescent Social Work Journal, 37(2), 123–136. https://doi.org/10.1007/s10560-019-00640-9

Paccaud, A., Keller, R., Luder, R., Pastore, G., & Kunz, A. (2021). Satisfaction with the collaboration between families and schools – The parent’s view. Frontiers in Education, 6, 1–12. https://doi.org/10.3389/feduc.2021.646878

Papadopoulos, D. (2021). Mothers’ experiences and challenges raising a child with autism spectrum disorder: A qualitative study. Brain Sciences, 11(3), Article 309. https://doi.org/10.3390/brainsci11030309

Paseka, A., & Schwab, S. (2020). Parents’ attitudes towards inclusive education and their perceptions of inclusive teaching practices and resources. European Journal of Special Needs Education, 35(2), 254–272. https://doi.org/10.1080/08856257.2019.1665232

Qorib, F., Nurdiarti, R. P., Septiani, F., & Setiawan, R. (2024). Teacher-parent collaboration; Enhancing education for children with intellectual disabilities. Health Education and Health Promotion, 12(4), 561–569. https://doi.org/10.58209/hehp.12.4.561

Ren, J., Li, X., Chen, S., Chen, S., & Nie, Y. (2020). The influence of factors such as parenting stress and social support on the state anxiety in parents of special needs children during the COVID-19 epidemic. Frontiers in Psychology, 11, Article 565393. https://doi.org/10.3389/fpsyg.2020.565393

Respicio, H. (2024, December 19). R.A. No. 7277 as amended by R.A. No. 9442, R.A. No. 10070 and R.A. No. 10524 [Commentary]. Respicio & Co. Law Firm. https://www.respicio.ph/bar/2025/labor-law-and-social-legislation/labor-standards/working-conditions-for-special-workers/persons-with-disabilities/ra-no-7277-as-amended-by-ra-no-9442-ra-no-10070-and-ra-no-10524

Rios, K., & Burke, M. M. (2021). The effectiveness of special education training programs for parents of children with disabilities: A systematic literature review. Exceptionality, 29(3), 215–231. https://doi.org/10.1080/09362835.2020.1850455

Sanders, M. (2024). Designing and assessing an evidence-based support resource for parents of children included in special education in a small, rural school district [Capstone project, Georgia State University]. https://doi.org/10.57709/36968704

Sayana, I. (2023). Evaluation of Ladislao Diwa Elementary School’s special education for children with intellectual disabilities [Undergraduate thesis, University of the Philippines Los Baños]. UPLB Knowledge Repository. https://www.ukdr.uplb.edu.ph/etd-undergrad/10405/

Shakiba, E., Fadavi, M. S., & Nadi, M. A. (2024). Explaining the concept of smart power and identifying its components in universities of medical sciences: A qualitative study. Payavard Salamat, 18(5), 1–11. https://payavard.tums.ac.ir/article-1-7746-en.html

Swafta, B., Qat, B., Abu-Dahab, S., Aldughmi, M., Hadoush, H., & Almasri, N. (2025). Evaluating multidisciplinary team effectiveness and parental satisfaction in special education settings in Jordan: Insights and areas for improvement. Preprints. https://doi.org/10.20944/preprints202501.0385.v1

Senate of the Philippines. (2022, February 19). Gatchalian on education recovery: Adequate support needed for marginalized learners [Press release]. http://legacy.senate.gov.ph/press_release/2022/0219_gatchalian1.asp

Shattnawi, K. K., Bani Saeed, W. M., Al-Natour, A., Al-Hammouri, M. M., Al-Azzam, M., & Joseph, R. A. (2020). Parenting a child with autism spectrum disorder: Perspective of Jordanian mothers. Journal of Transcultural Nursing, 32(5), 474–483. https://doi.org/10.1177/1043659620970634

Starks, A. C., & Reich, S. M. (2023). “What about special ed?”: Barriers and enablers for teaching with technology in special education. Computers & Education, 193, Article 104665. https://doi.org/10.1016/j.compedu.2022.104665

Strogilos, V., King-Sears, M., Tragoulia, E., & Toulia, A. (2024). Students’ experiences and views on co-teaching: A systematic review. European Conference in Educational Research. https://eprints.soton.ac.uk/488671/

Suicano, D. J. B., Clorion, F. D. D., & Gyawali, Y. (2023). Exploring socioeconomic status and vocabulary learning strategies: Is there a socioeconomic gap? Journal of Education & Language Studies, 1(2), 81–102. https://www.researchgate.net/publication/389545054

Tillman, G. D., Jr. (2024). The individualized educational program process through the lens of parents of special education students [Doctoral dissertation, Houston Baptist University].

Tokatly-Latzer, I., Leitner, Y., & Karnieli-Miller, O. (2021). Core experiences of parents of children with autism during the COVID-19 pandemic lockdown. Autism, 25(4), 1047–1059. https://doi.org/10.1177/1362361320984317

Tonks, D., Kimmons, R., & Mason, S. L. (2021). Motivations among special education students and their parents for switching to an online school: Survey responses and emergent themes. Online Learning, 25(2), 171–189. https://doi.org/10.24059/olj.v25i2.2141

UNESCO Institute for Statistics (UIS). (n.d.). Special needs education [Glossary definition]. Retrieved in 2021 from https://uis.unesco.org/en/glossary-term/special-needs-education

UNICEF. (2021, December 2). The world’s nearly 240 million children living with disabilities are being denied basic rights – UNICEF [Press release]. UNICEF Press Centre. https://www.unicef.org/press-releases/worlds-nearly-240-million-children-living-disabilities-are-being-denied-basic-rights

United Nations Philippines. (2020, November 26). UN Philippines renews call for inclusive education at launch of new UNESCO report. UN Philippines News and Media. https://philippines.un.org/en/102473-un-philippines-renews-call-inclusive-education-launch-new-unesco-report

Weber, J., & Skyer, M. (2022). The aesthetics of OER, deaf pedagogy, and curriculum design contra the “wicked” policy of deaf education. RIED-Revista Iberoamericana de Educación a Distancia, 25(2), 73–90.

Wong, F. E., Aman, N. A., Rashid, M. A., Farzana, Y., Vytialingam, N., Kabir, M. S., Ahmed, S. U., Shirin, L., Islam, T., Ying, T. S., Maung, T. M. M., Chia, T. Y., Bhargava, P., & Nazmul, M. H. M. (2024). Experiences and difficulties of parents in caring for their children with autism living in Malaysia. Educational Administration: Theory and Practice, 30(4), 2569–2574. https://doi.org/10.53555/kuey.v30i4.1895

Young, S., Shakespeare-Finch, J., & Obst, P. (2020). Raising a child with a disability: A one-year qualitative investigation of parent distress and personal growth. Disability & Society, 35(4), 629–653. https://doi.org/10.1080/09687599.2019.1649637

Yusuf, M., Mai, M. Y., Garba, S. A., Aroyewun, T. F., Perveen, A., & Babatunde, B. N. (2025). Challenges of Edu 4.0 in inclusive education: A qualitative analysis with quantified qualitative data. International Journal of Learning, Teaching and Educational Research, 24(1), 481–499.

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